Parents’ Corner

Category: Community Corner

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Details of Awareness, Treatments, Causes & Symptoms of Cerebral Palsy

Cerebral refers to the brain and Palsy refers to poor muscle control or weakness. Cerebral Palsy (CP) is not a disease, but a term used to describe a group of disorders resulting from a defect to one or more areas of the brain that occur pre birth or in infancy. CP is a non progressive condition as the brain damage…

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Know the Best Definition of Disability Over Difficulties and life

Nearly everyone faces hardships and difficulties at just one occasion or another. But for people with disabilities, barriers are often more frequent and have greater impact. The World Health Organization (WHO) describes barriers as being quite just physical obstacles. Here is the Definition of Barriers: “Factors during a person’s environment that, through their absence or presence, limit functioning and make…

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They Said We Couldn’t: 4 Things You’re Going Get From The Book

The road to life is not straight. Here, we have to pass through many curves. But some people are extraordinary and have to go through many zigzag paths in life. Yes, I am talking about those who have any physical/mental disability. If an ordinary person faces so many challenges in life, think what kind of challenges a disabled person faces…

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Adult Changing Tables Are a Good Idea

When you fly and have several stops to get to your final stop, you feel all dirty and need to change. If you are an able body, you can change in the bathroom without any trouble. When you are a person with a disability, it is really difficult to change in a bathroom stall. In a bathroom, there is usually…

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What is PBIS and Can it Help ALL Students

It is so fun to know what your I.Q. is and we sometimes ask our friends what their I.Q. is as a joke. What are these statistics for and does it have any importance for how smart we are? I will answer the latter question first. The answer is no. There is no evidence that shows how smart someone is.…

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Surprised By a New PCA

What if your case manager just changed your primary personal care assistant (PCA) agency on you without telling you, what would you do? If you are not familiar with me, I live on my own in a building called Katharine Manor Apartments. I hire my own aides and pay them. So, I don’t have a case manager, but a lot…

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Bullying — Can We Actually End It?

These days bullying is getting worse and it is not improving. Bullying is not new – it’s going on for decades. My dad was bullied when he was a teenager and he is almost 90 years old. In his time, kids did it for fun and would forget it. Today kids can do more damage than in dad’s time or even my…

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Is Cerebral Palsy Linked to Depression?

[et_pb_section admin_label="section"] [et_pb_row admin_label="row"] [et_pb_column type="4_4"][et_pb_text admin_label="Text"] The United Kingdom has done research on adults with Cerebral Palsy and depression. They say there are a higher number of people with Cerebral Palsy and who have depression than other people. They seem to be trying to link Cerebral Palsy and depression together.  Before I go any further, let me make it…

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It’s Time of Giving – How Can We Give the Right Way?

It is Christmas season again and a just wonderful time of the year. This season is a time of giving. As a person with a disability, we are usually on the receiving end throughout the year mostly. We have personal care assistants helping us, our family members helping out, and sometimes organizations drop off food time to time. Since it…

USEFUL LINKS

General Information About CP

United Cerebral Palsy has a site that is filled with useful information about CP. They explain the different types of Cerebral Palsy. They can help you to find assistance if you need it. I say this site is the main place to learn what CP is all about. 
Cerebral Palsy is a neurological disorder marking muscle coordination. In most cases, cerebral palsy is caused by brain damage that develops while the baby is still in utero or during or shortly after birth. Comprehensive information about cerebral palsy and most common types can be found at Cerebral Palsy Guidance.
Cerebral Palsy Group is a robust site that provides “high quality, medically-reviewed data” on everything related to CP, as well as financial and legal help, treatment and therapy resources. There is a number to speak with a case worker as well.

Inspiration & Advice from Community Members and Parents of People with Disability

Tamera Weeks has an adult daughter with CP. They have a YouTube channel showing the day to day struggles with CP.
Charisse has CP and also has a YouTube Channel. She shows people what a person with CP can do. Her videos are really fun to watch.
Wonder Moms is a site created by 3 moms. They all have special needs children. Their site is filled with useful posts for parents.
Barton and Megan Cutter are a married couple. Barton has CP and they have a consulting business. They do talks around the country. One thing that I really like about them is their love for each other.

Accommodations & Assisted Living

About Assisted Living is a wonderful site to learn how to take care of a child with a disability as well as elders.
Illinois Independent Living Center aka Katharine Manor is a building that was designed for people with disabilities to live on their own. I am currently on the board.
Nationwide Lifts is a company that modifies houses for people with disabilities. They have stairs lifts, elevators and many other things to help people with disability.
 

I co-wrote a book entitled “They said We Couldn’t” with my friend Lisa Cesal about our lives with Cerebral Palsy. We want to spread the message that people who have Cerebral Palsy can do anything they want in life.

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